Our Registry covers the states of Alabama, Mississippi, Georgia, and Florida and is open to people of all ages from birth and up.

*Note: For adults with intellectual disability looking to participate in the registry, please email us at idlab@ua.edu or call 205-348-4253 so that we may discuss your participation.*

  • Telephone Registration.  If your child is a minor, call the registry at (205) 348-4253 or (205) 887-4312, or we can call you. Telephone registration will take about 15 minutes, and may be done in the same phone call of Step 1.
  • Online Registration.

Are you eligible?

1.) Do you or a family member have an intellectual disability or a syndrome closely related to intellectual disability (Ex: Down syndrome, Fetal Alcohol Syndrome, Fragile X Syndrome)?

2.) Are you willing to be contacted up to 3 times per year by registry staff about research studies?

3.) Are you willing to be willing to be contact 2 times per year by registry staff to update basic contact information?

If you answered yes to these 3 questions you or your family member are eligible for the registry!!