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Join the Registry

How to Join

Our Registry covers the states of Alabama, Mississippi, Georgia, and Florida and is open to people of all ages from birth and up.

*Note: For adults with an intellectual disability looking to participate in the registry, please email us at or call 205-348-4253 so that we may discuss your participation.*

Online Registration

Complete the Online Registration Form.


Paper Registration

If your child is a minor, print the registration forms (Informed Consent & Background Questionnaire), and submit them by mail, email, or fax:

Attn Fran Conners
Department of Psychology
Box 870348
The University of Alabama
Tuscaloosa, AL 35487-0348
fax: (205) 348-8648


Telephone Registration

If your child is a minor, leave a message at (205) 348-4253 or (205) 348-5083, and we will call you. Telephone registration will take about 15 minutes, and may be done in the same phone call of Step 1.


If you answer “yes” to these three questions, you or your family member are eligible for the registry:

  1. Do you or a family member have an intellectual disability or a syndrome closely related to intellectual disability (Ex: Down syndrome, Fetal Alcohol Syndrome, Fragile X Syndrome)?
  2. Are you willing to be contacted up to three (3) times per year by registry staff about research studies?
  3. Are you willing to be contacted two (2) times per year by registry staff to update basic contact information?